Wednesday, December 10, 2008

Holding our breath


Today I take Mr. T to the pediatric neurologist. He's been seizure free for over a year and the doctor will give the go-ahead to try him off his medication to see if the seizures are gone. For good.



He has an 80% chance of outgrowing the seizure disorder by puberty. A 60% chance he'll outgrow them before puberty.



The remaining % chance is that he'll have the seizures his whole life.

The only way to find out is to take him off the meds and do a dry run.

You now have a pretty good idea of what I'm praying about lately.

32 comments:

  1. Then we are ALL praying...very, very hard.

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  2. Well, as you told me not too long ago - "consider yourself prayed for."

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  3. Praying he's in the 60% category.

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  4. My nephew has epilepsy and he outgrew the seizures by late middle school or high school.

    I'm sending my prayers your way. And keeping my fingers X'd just to add a little extra umph!

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  5. Oh, honey. I'm praying for you, too. Keep the faith, my friend.

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  6. Sending seizure free thoughts your way... And oh, what a handsome one he is!

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  7. Oh, yes, prayers from here, too.

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  8. You won't be praying alone...what a cutie.

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  9. hugs and prayers for Mr. T!!!

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  10. Saying a little prayer for both of you. Oh, and crossing my fingers too.

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  11. What wonderful pictures of a great kid. I've felt a part of both his triumphs and his struggles through your writing and your blogs. My heart and hopes are with you all for the best of all possible outcomes in the days and weeks ahead.

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  12. A mothers heart certainly prays fervently for her kids! I'll be praying, even now. God is more than big enough.

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  14. Fingers so tightly crossed for you, and I'm sending mad amounts of good thoughts and hopes for good news.

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  15. Oh, and on the upside, looks like your flooring needs are covered, if the comment above mine is any indication. ;-)

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  16. I'm praying along with you. Thanks for sharing the need!

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  17. There are hope and prayers heading your way from this blogger, too.

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  18. Fingers crossed, good vibes sent.

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  19. Oh, my goodness. I will absolutely be praying for you and your family this week. Remember to breathe. -MM

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  20. Sweetie, we are praying too, and sending big warm hugs.

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  21. I hope so very much you get the best news ever.

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  22. Here's wishing for the best possible outcome!

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  23. Oh my goodness! Big prayers, and big hugs.

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  24. Wow - what a scary leap of faith, huh? I'll be praying too:)

    Are you going to make it to the MN/WI get-together?? Sure hope so.

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  25. I will send positive vibes that he is seizure free.

    I was one of the 80%. I took Dilantin from ages 6 through 12, then did the medicine-free trial and have never had another seizure.

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  26. I hope it goes well... your little boy is in my prayers.

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Spill it, reader.